摘要

目的：系统整合痴呆患者和照顾者病耻感体验，为促进患者和照顾者身心健康提供参考。

方法：计算机检索PubMed、Web of Science、Embase、CINAHL、Medline、Psyc INFO、Cochrane、中国知网、万方、维普、中国生物医学文献数据库关于痴呆患者和照顾者病耻感经历的质性研究，检索时限为建库至2023年6月。采用“采用澳大利亚JBI循证卫生保健中心质性研究质量评价标准（2020）”进行文献质量评价，使用汇集性meta整合

方法对

结果进行整合。

结果：共纳入10篇研究，提炼出72个研究

结果，归纳出10个新类别，最终综合为认知归因、情绪反应、行为反应3个整合

结果。

结论：痴呆患者和照顾者深受病耻感的伤害，并造成心理损伤与病情加重。医护人员应增强自身知识与能力，同时依据患者与照顾者的个体差异，针对性的加强患者、照顾者的痴呆知识教育，促进家庭、社会支持体系构建，全方面预防病耻感伤害。

关键词：痴呆 照顾者 病耻感 meta整合

ABSTRACT

Objective: A systematic review of experiences of stigma among patients and caregivers with dementia to provide references for promoting physical and mental health among patients and caregivers.

Methods: We searched databases including PubMed, Web of Science, Embase, CINAHL, Medline, Psyc INFO, Cochrane, CNKI, Wanfang Data, VIP and CBM from inception to June 2023, to collect qualitative studies exploring the experience of patients with dementia and their main caregivers in stigma. The quality of included research was evaluated using the JBI Critical Appraisal Tool for qualitative studies from Australia.The results were integrated by a meta-aggregation method.

Results: A total of 10 studies were included，with 72 complete research findings grouped into 10 categories by their similarities.3 integrated findings were synthesized，cognitive attributions,emotional reactions,and behavioral attributions.

Conclusion  : People with dementia and caregivers are deeply harmed by stigma and cause psychological damage and exacerbation. Medical staff should enhance their own knowledge and ability, and at the same time, according to the individual differences between patients and caregivers, strengthen the dementia knowledge education of patients and caregivers, promote the construction of family and social support systems, and prevent stigma harm in all aspects.

Key words: dementia caregivers stigma meta-synthesis